A Womans Guide To Living With Heart Disease – Carolyn Thomas

And they probably don’t understand the effort that goes into a normal day. They don’t see or understand because they have some degree of what I am calling healthy privilege. Healthy people enjoy the privilege of bodies that work in the ways that they expect, free from regular pain or suffering, without extraordinary effort. Healthy privilege allows healthy people to assume that their experience is normal, and to be unaware that coping strategies that work for them will not work for someone dealing with illness.2 Dr. Becker-Schutte was describing those young techies in Silicon Valley.

But she could also be describing healthy family members, healthy friends, healthy work colleagues, or healthy care providers who may be well meaning but just don’t get it, because they have always been so damned healthy. What this means in everyday life is that there’s a big fat difference between a highly engaged community that enthusiastically uses technology to track daily indicators such as weight / mood / motivation / sex life / food / exercise / bowel habits / hobbies / sleep / keyboard strokes (yes, seriously) —and actual sick people.

And real people living with a debilitating chronic illness every day may lack the energy, ability, or will to commit to technology in any kind of meaningful fashion. Or as Toronto patient advocate Kathy Kastner, author of Death Kills, and Other Things I’ve Learned on the Internet, mused one day on Twitter: “Self-tracking means you’re focused on your illness all the time.

Is data the answer to everything?”3 No, Kathy. More data is definitely not the answer to everything. Please pass that memo on to the Silicon Valley hypemeisters. As a person living with chronic illness, I’m already feeling worn out most days from needing to focus on symptoms. My idea of self-tracking is putting a sparkly reward sticker on my bathroom cabinet calendar for each day I’m able to exercise.

I used to award myself a sticker only for major physical accomplishments, such as an hour’s brisk walk or an hour in the gym at Friday’s weight-training class. But unlike the keen followers of the Quantified Self movement (who seem to believe that if they didn’t track it, it somehow didn’t happen), I decided to change my unofficial reward policy recently to now include even the slowest of walks or the lightest of weights on a bad day.

Note to the Reader: This book is not meant to substitute for medical care and treatment should not be based solely on its contents. Instead, treatment must be developed in a dialogue between the individual and her or his physician. This book has been written to help with that dialogue. © 2017 Johns Hopkins University Press All rights reserved. Published 2017 Printed in the United States of America on acid-free paper 2 4 6 8 9 7 5 3 1 Johns Hopkins University Press 2715 North Charles Street Baltimore, Maryland 21218-4363 www.press.jhu.edu Library of Congress Cataloging-in-Publication Data Names: Thomas, Carolyn, 1950–, author.

Title: A woman’s guide to living with heart disease / Carolyn Thomas. Description: Baltimore : Johns Hopkins University Press, 2017. | Includes bibliographical references and index. Identifiers: LCCN 2017009948| ISBN 9781421424194 (hardcover) | ISBN 1421424193 (hardcover) | ISBN 9781421424200 (paperback) | ISBN 1421424207 (paperback) | ISBN 9781421424217 (electronic) | ISBN 1421424215 (electronic) Subjects: LCSH: Heart diseases in women. | BISAC: HEALTH & FITNESS / Diseases / Heart. | MEDICAL / Public Health. | HEALTH & FITNESS / Women’s Health.

Classification: LCC RC682 .T53 2017 | DDC 616.1/20082—dc23 LC record available at https://lccn.loc.gov/2017009948 A catalog record for this book is available from the British Library. Special discounts are available for bulk purchases of this book. For more information, please contact Special Sales at 410-516-6936 or [email protected]. Johns Hopkins University Press uses environmentally friendly book materials, including recycled text paper that is composed of at least 30 percent post-consumer waste, whenever possible.

1kitap1.com/en To my darling grandbaby, Everly Rose. On the day you were born, one of my Heart Sisters blog readers predicted, “This precious little child will do more good for your heart than anything your cardiologist could ever prescribe for you.” She was right. 1kitap1.com/en Contents Foreword, by Martha Gulati, MD, FACC Preface Acknowledgments 1.

The First Signs The Slow-Onset Heart Attack Typical and Atypical Heart Attack Signs There’s Pain, and Then There’s Pain How Does It Really Feel to Have a Heart Attack? 2. Deadly Delay Denial during a Cardiac Crisis Would You Rather Be Embarrassed—or Dead? Denial after a Cardiac Crisis In Denial—Even Around Our Doctors Where Are You on Your Own Priority List?

3. Finally, a Correct Diagnosis How Does a Cardiac Misdiagnosis Happen? Male-Pattern versus Female-Pattern Heart Disease Are Diagnostic Errors in Cardiology Reported? 4. The New Country Called Heart Disease What I Didn’t Know before My Hospital Discharge The Homecoming And Then the Homecoming Blues Why Am I So Tired? Accepting —and Offering—Help Welcome to Your New Country 5.

This is a short excerpt from the opening of “” by Unknown, quoted for review and introduction purposes. All rights belong to the copyright holders.

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